Cystinuria Coach

The Blog

New posts, plus my original Cystinuria Blog posts, each marked with the date I first wrote it.

Now: new posts

New posts are coming soon. Follow along on Instagram in the meantime.

Then: from the archive (2008–2014)

Genetic Link to Kidney Stones Identified

From the archive

Phantom Kidney Stone Pain in Chronic Sufferers

From the archive

Taurine In Energy Drinks Exacerbates the Production of Cystine Kidney Stones

From the archive

Gouging Cystinuria Patients (And Others) - No Surprise Here.

From the archive

How I Became Kidney Stone Free While Living With Cystinuria.

From the archive

new primary care physician

From the archive

Here we go, yo!

From the archive

OR Video Showing Ureteroscopy, Laser, and Stent Placement

From the archive

TENS Unit Pulse Settings and Placement Guide

From the archive

Nothing.

From the archive

Right sided pain. Yeeowch!

From the archive

Um...Ouch???!!!

From the archive

Waiting for official CT read

From the archive

Something Navy Docs Don't Do:

From the archive

CT Scan Scheduled for Tuesday Morning.

From the archive

The Waiting Game

From the archive

The Death Song

From the archive

A Lysol Wipe a Day Keeps Kidney Failure Away

From the archive

It's Movin' On Down

From the archive

A Better Day

From the archive

7-8/10 stabbing kidney pain

From the archive

Cystinuria is in the News!

From the archive

Kidney Failure in Cystinuria Patients

From the archive

The Big Screwup

From the archive

Paranoia Checklist

From the archive

Acute kidney plushie! (Get it?)

From the archive

Kidneys aren't acting right this month.

From the archive

Keeping in theme with cute kidneys:

From the archive

Kidneys hurt and you need a good laugh?

From the archive

Whoops.

From the archive

Kidney Stone Article in NEJM Resident E-Bulletin

From the archive

Pyridium (Phenazopyridine) Replaces Narcotic Pain Medication For Acute Kidney Stone Pain

From the archive

And the stone was...

From the archive

I'm So Stoned Right Now!

From the archive

New GFR Calculator

From the archive

Welcome Back, Bi-lateral Kidney Pain and nausea. Oh, how I missed you!

From the archive

Pssst...can I tell you a secret?

From the archive

Bladder training....it works!

From the archive

Thank Goodness For Good Insurance!

From the archive

I guess taking the stent out really was the cure!

From the archive

Yay! The stent is out!

From the archive

Idiot!

From the archive

How to Minimize Ureteral Stent Pain

From the archive

I wouldn't wish this pain on anyone

From the archive

When Ureter Stents Go Wrong:

From the archive

A Gazillion New Stones

From the archive

New urologist

From the archive

Lucky and Hopeful

From the archive

Funny rant from an ER doc to drug seekers

From the archive

Movers are coming tomorrow!

From the archive

Moving date is set - time to find a new urologist!

From the archive

Kidney update - first pain in a while

From the archive

Too sick for Japan lol

From the archive

Fun urine story #2

From the archive

Rough 2 weeks

From the archive

Stoned again!

From the archive

update from clairesmom

From the archive

Short Introductory Article On Cystinuria, Including Quotes From Dr. Goldfarb

From the archive

For anyone interested in contributing to this blog

From the archive

My cystine levels

From the archive

New question about twisting.

From the archive

"People don't usually feel kidney pain..."

From the archive

Great article on kidney donation

From the archive

No new kidney stones, no real news

From the archive

Still hurting...

From the archive

Pain management

From the archive

Today is a bad day :_(

From the archive

CT Scan done today

From the archive

AURRRRGH!

From the archive

Too Good To Be True

From the archive

Uhoh...

From the archive

First real side effect of thiola

From the archive

My First Weekend On Thiola

From the archive