Hi, I'm Lynne.

I've lived with cystinuria for about 20 years.

Painting of a sad orange kidney

I was diagnosed with cystinuria in my 20s. Back then I wrote about it, sometimes daily, on a little site called the Cystinuria Blog, under the name “Kidney Girl.” The posts were raw: the ER visits, the stents, the medicine side effects, the bad days and the good ones.

That blog went quiet years ago. Cystinuria Coach is its next chapter. You'll find my original posts here, each one marked with the date I first wrote it, next to a note about how things look for me today.

I've also written several books on cystinuria, kidney stones, and managing a diagnosis. You can find them on the Books page.

Come say hi on Instagram at @thecystinuriacoach.

I'm a patient sharing my own experience, not a medical professional. Please talk with your own care team about your treatment.