20 years with cystinuria · Lynne White
Cystinuria is hard.
You don't have to figure it out alone.
Honest stories from the worst years, what I've learned since, and the guides I wish I'd had when I was first diagnosed in my 20s.
Then
Original posts from my old Cystinuria Blog (2008–2014), raw and unedited, with the date I first wrote them.
Now
A “20 years later” note on each one: what changed, what didn't, and what I'd tell my younger self.
From the archive
All posts →How I Became Kidney Stone Free While Living With Cystinuria.
It's closing in on almost a decade since I was first diagnosed with cystinuria, and aside from this blog and popping into the occasional forum when I…
Read then vs. now → Originally written August 21, 2009I wouldn't wish this pain on anyone
So, Wednesday I had my 2nd ever ESWL and my 8th stent. This time, the ESWL went perfectly! I woke up pain free in regard to my kidney and renal pelvis…
Read then vs. now → Originally written July 31, 2009A Gazillion New Stones
Hi Everyone, Well, I'm finally in California and my husband has left for Japan...twice. He came home for a military conference about 4 weeks after he…
Read then vs. now → Originally written June 4, 2009Lucky and Hopeful
I am thoroughly stoked. So we're here in California trying to get all settled and whatnot, and the unbelievable happened. I learned that TriWest (Tric…
Read then vs. now → Originally written January 5, 2009Today is a bad day :_(
Those are real tears by the way. I have a lot to say this morning so bear with me. I am in pain...still, except I'm noticing it more today. It's the s…
Read then vs. now → Originally written November 17, 2008My First Weekend On Thiola
I can definitely see how people who are d-penicillamine intolerant can experience some of the same issues on thiola. This weekend has been pretty path…
Read then vs. now →Books by Lynne White
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Daily life, small wins, and the occasional rant.