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From the archive · Originally written March 8, 2009

For anyone interested in contributing to this blog

Written as “Kidney Girl” on the original Cystinuria Blog · 1 min read

Thanks in part to Cystinuria.org/forums, I'm finally getting some visitors who have cystinuria! Thank you for your comments. We can all learn from each other, and we need to, since this disease is so uncommon.

If anyone would like to write about their experiences and post them on this blog, send an E-mail to misstammy at gmail dot com along with a quick note saying how long ago you were diagnosed with cystinuria and I will add you to my blogger account as a contributor. Whether you want to share your story, talk about treatment successes and failures, pediatric management, drug side effects, pain management, new studies, etc., it doesn't matter.

Want the whole story, organized and updated?

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